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Living With Trisomy 13

An outreach for trisomy and other rare diagnoses  


Please visit our "Sister" Trisomy 13 - Patau Syndrome sites:

S.O.F.T Support Organization for Trisomy 13, 18 and related disorders

Prenatal Partners Trisomy 13 Stories

Trisomy Advocacy Group (TAG)







I want to personally thank all the parents who have submitted their children’s stories throughout the years. You have truly been the foundation that has kept this site running for all these years.


Thank you for allow us only into your most intimate and personal thoughts and journeys.


Together as a family and a community we can raise awareness for our children.

Living Albums

Treasured Memories

Prenatal Albums

Misdiagnosed Albums

These are the stories of our journeys. Get ENCOURAGED, lift up your HOPE, get INFORMED and INSPIRED to share. Please share the story of your journey with us

Video Albums



© All text and graphics are copyright of Living With Trisomy 13 www.livingwithtri13.org and all other registered domains to this company

All Rights Reserved. Copyright 2012 .

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.

                   If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved. Used with permission.